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Program 23 februarie 2009 – Zalau

22 februarie 2009

untitled-1 PROGRAM CAMPANIE – ZIUA BOLILOR RARE
Zalău, Casa de Cultură a Sindicatelor – 23 februarie 2009, ora 16

1 Dorica Dan – speech + diplome
2 Speech-uri invitaţi – autorităţi locale
3 Filmul campaniei
4 Sceneta BBBS (copii cu dizabilităţi şi voluntari) – C.S.E.I.Speranţa Zalău
5 Program artistic – C.S.E.I. Şimleul Silvaniei (copii cu dizabilităţi)- prof. Narcisa  Ioana
6 Ansamblul Columna dans popular
7 Formaţia de mandoline – Nuşfalău
8 Cântece populare (2) – Chira Alexandra – Plopiş
9 Dans modern – New Style jr
10 Scenetă – Dl Goe la proces – Şc. Ghe Lazăr (cls. a VII-a, prof. Dorolţi Oana)
11 PAUZA
12 Dans roman- New Style jr
13 Obicei popular – Haba -Plopis
14 Dans popular (Pecei)- Calusarii si Tripistelu
15 Cântece populare – Aurelian Măsălar şi Oana Şerban (duet)
16 Dans majorete-New style jr
17 Cârlanii –vodevil – Lic. Pedagogic- prof. Flavia Ardelean
18 Dans ţigănesc – Lic Pedagogic – cls a X-a B – prof. Ana Cheţa
19 Grup vocal –Dorulet, Sc. C. Coposu, înv. Floare Horincar
20 Dans modern-Humoris(DASC)
20 Taraful Mugurelul-Liceul I. Sima, prof. Titus Campan

În foaier:
– expoziţie de desene premiate la Concursul „Lumină din lumină” organizat de APWR şi ISJ Sălaj
– expoziţie cu vânzare (lucrări realizate de copii cu dizabilităţi)
– pictură pe faţă
– tombolă -19.53

4 comentarii leave one →
  1. Dorica Dan permalink*
    24 februarie 2009 20:34

    A fost o zi deosebita! Multumesc tuturor celor care au fost prezenti in sala, celor care au sprijinit realizarea programului artistic,celor care au mediatizat evenimentul,Inspectoratului Scolar, Autoritatilor Locale, Casei de Cultura a Sindicatelor, profesorilor, coordonatorilor, copiilor, voluntarilor si echipei APWR!
    Am demonstrat ca putem fi solidari intr-o actiune umanitara si cel mai mult, am demonstrat ca pacientii cu boli rare nu mai sunt singuri si vulnerabili pentru ca au sprijinul comunitatii in care traiesc.
    Multumim!

  2. 24 februarie 2009 19:14

    Eu zic ca a iesit bine….am auzit ca lumea aplauda…semn ca le-a placut ce au vazut…si au fost prezenti in numar destul de mare…chiar daca mediatizarea a intarziat umpic,pana la urma a fost OK,si s-au impartit in mare parte materialele pt mediatizarea campaniei…sper sa ne bucuram si la anul de un spectacol cu ocazia ZILEI BOLILOR RARE ! Va salut!Numai bine!

  3. elutaf permalink
    24 februarie 2009 18:41

    a fost obositor, dar a meritat
    sala a fost plina, publicul a fost entuziast si a rasplatit cu aplauze calduroase eforturile artistilor
    cel mai mult mi-a placut sceneta copiilor si voluntarilor din proiectul Big Brother Big Sister … un indemn la solidaritate si acceptare … cred ca fiecare persoana din sala a fost ieri prietenul Ligiei 🙂

    m-a impresionat apoi(si nu pentru prima data) Tedy Necula, un om RAR care in ciuda bolii nu se lasa invins … dupa ce in calitate de regizor ne-a pregatit in mod reusit campania media, a fost alaturi de noi la evenimentul de ieri, oferindu-se sa ajute la ultimele pregatiri pentru spectacol

    si asa cum spunea si rob, cel mai important lucru este interesul aratat de oamenii din Zalau, fata de bolile rare … faptul ca prin pliantele, brosurile si celelalte materiale impartite oamenii au devenit mai constienti, mai informati

  4. elutaf permalink
    24 februarie 2009 18:17

    It was a cold, wintery day in Zalau on February 23rd, 2009. Some might have thought it was the kind of day to stay indoors to stay warm. But for the Romanian Prader Willi Association and the community of Zalau it was the day to kick off the campaign on rare diseases and come together to get behind the campaign of rare disease awareness and support patients and their families. A packed House of Culture was the site of the event where local citizens, politicians, school dance and music groups, patients, families, and stakeholders in rare diseases joined together to recognize that rare diseases are a public health priority. The event began with a few words from the people that made this event possible. Politicians and leaders from the Romanian Prader Willi Association reflected on the need to see rare diseases as a collective issue and not just the problem of a few, isolated patients. The community sat in a dim auditorium and listened as local leaders voiced their opinions and support of the Rare Disease Day and the importance of awareness and action so that none of the patients affected by rare diseases and their families have to suffer in isolation. A short but poignant documentary film that was created by the Romanian National Alliance for Rare Diseases and a talented young filmmaker who is also a young man living with a rare disease highlighted the challenges that patients with rare diseases face. Then it was time for talented young artists to share their skills all with the hope of raising money for the cause. The audience was treated to performances from school music, theatre, and dance groups that came together to share their skills for the improvement of the situations of those less fortunate than themselves. While this was going on, the local day center for people with disabilities displayed handicrafts that their beneficiaries had created for sale. Additionally, informational brochures and materials were disseminated to those interested in learning more about rare diseases and their worldwide impact. Pieces from a local art contest sponsored by Prader Willi Association decorated the lobby and a local teacher helped out by doing face painting for young people who attended.

    The show can be viewed as an overwhelming success no matter how much money was raised for the camp for young people with rare diseases that Prader Willi will hold this summer. The most important part of the day was the Zalau community showing their interest in supporting people with rare diseases by literally overflowing the seats and standing in the aisles to watch the show. Though some might have only came to watch their children perform, they also walked away with the message that rare diseases are everyone’s problem and not just those living with them. The entire community will benefit from better access to diagnosis, treatment and services for rare health conditions and that is exactly what the campaign seeks to bring to light.

    After a four hour program of incredible local talent, Zalau’s citizens streamed out of the auditorium holding their raffle prizes and brochures and can now be active participants in spreading the message in the importance of increase access and quality of care for those impacted by rare diseases. Rare diseases are on the radar of people at every level: European, national, and local and positive changes can already be felt. This model of community action will be utilized throughout cities in Romania this week and will culminate in a conference on Rare Diseases to be held this Saturday, February 28th in Bucharest.

    de la Rob voluntarul nostru de la Corpul Pacii

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